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04 July 2020

Highlights

Empowering patients and citizens to become more involved in medicines develpoment

eupati logoOn 2 April 2014, more than 150 representatives from patient organisations, industry, academia and the world of regulation met in Warsaw, Poland, with an ambitious objective in mind: devise an action plan to reach out to tens of thousands of European patients and citizens, equip them with information and tools to understand how medicines are developed and ultimately to encourage them to become more involved in the process.

This ambitious objective is the raison-d'ĂȘtre of EUPATI, the European Patients' Academy. Funded by the Innovative Medicines Initiative (IMI) and launched in 2012, the EUPATI project aims to empower patients  and citizens to be effective advocates and advisors in clinical trials, with regulatory authorities and in ethics committees. 30 partners have joined forces in this projetc, ranging from patients' organisations, universities and not-for-profit organisations expert in patient and public engagement, along with many European pharmaceutical companies.

The Warsaw meeting marked an important time for the project, as the aim of the meeting was to exchange ideas to build an action plan on how to reach out to patients and the general public. Representatives from patients' organisations, industry and health authorities discussed and debated in a series of worshops how to best address the three main gaps in medicines development:

1. Too few patients know enough about medicines development to be helpful to regulators and companies, to give them the information they need to improve the output of their work.

2. There is a lack of educational resources for patients which explain medicines development  and which are truly reliable, objective, up-to-date and of top quality.

3. The general public does not know enough about medicines development.

A full report of the EUPATI Warsaw Workshops, with a summary of the key issues debated at the conference, is available for download here. All the presentations of the event can also be accessed here.

Infographics on patients' and citizens' knowlegde of medicines development are also available on the EUPATI website.